One of the resources I found was this blog. Steve, is a 44 year old Congenital Heart Defect (CHD) survivor. His blog became one of my biggest sources of information and Steve became my friend (despite me telling him that he was old enough to be my father!!! Sorry Steve!!!). He even reached out to Shane and provided him with some great articles about becoming a father of a heart baby.
I learned more about Hypoplastic Left Heart Syndrome and the history, care, and treatment of Congenital Heart Defects from Steve and his blog than anywhere else.
Steve wrote a post about a very special day coming on November 29th. Please be sure to click that link and go over and read it!
Thank you Steve. Thank you for your contrabutions to CHD awareness. Thank you for supporting Cardiac Kids and their families. Thank you for your emails of encouragement. Thank you for being our friend.
4 comments:
The interwebs are a brilliant source of information and support.
thank you for the link.. this dec28th it will be 7 years that Iysis passed away from HLHS.
Jill, is it ok if I share this link with others on my facebook?
lauren- yes! please do!!! :o)
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